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The interesting part was the B12 level was normal at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. Findings from a study of patients who received radioactive iodine (RAI) treatment for hyperthyroidism show an association between the dose of treatment . Follow me on Facebook, TikTok, and Instagram for up-to-date thyroid tips, tricks, videos, and more. TSH. I cannot take anything other than porcine thyroid with rice flour as filler (compounded). In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. <0.01 It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. If this occurs, it is usually goes away as the body heals. I know this post is older but I am considering radiation! It seems though that people who are already overweight BEFORE their procedure probably have the worst outcome and tend to gain the most weight compared to others. Iodine is a mineral that your thyroid uses to create thyroid hormone. Im a nurse, and tend to over think things. As a result, it isnt uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they dont have enough thyroid hormone). At that time my numbers were so low I was experiencing eye problems. So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. I eat three meals with three snack times. I had my RAI 3weeks ago and they did not gave me a pros and con what to expect after. You can opt-out at any time. Small amounts of I-131 may also leave through your saliva, sweat and feces. Is it 10 days? I wish I had found it weeks ago, but I didnt so I have to move on. What is your life going to be like after radioactive iodine treatment? The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. Its not vain at all! Hey! It is what it is. They are planning radioactive iodine in the future. Perhaps the most concerning of all of the issues after RAI is weight gain. Not only can doctors NOT find a thyroid replacement that works for me due to side affects, Ive lost 70% of my hair and have to wear wig, Ive gained more weight than ever before in my life, Im constantly fatigued, in pain, moody, still have a very fast heart rate between 110-130, anxiety (like Im still hyperthyroid, but Im not.) Radioactive iodine (often abbreviated RAI) is a therapy used to treat hyperthyroidism and thyroid cancer. Any advice . Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. 4. NOT GOING TO TAKE MORE PILLS! Some on the list I cant take to begin with, iron is one, when I take it, no matter how strict I am about taking it so many hours before or after other meds and meals, I still puke it up about fifteen to twenty minutes after taking it. LH :4.12(1.70-8.60) I have expressed my symptoms to the dr and she did a panel revealing my TSH to be 3.687. I have the symptoms of hypo not hyper, is she wrong? You're given a drink or capsule that contains iodine and a low dose of radiation, which is . Verywell Health's content is for informational and educational purposes only. This resource is dedicated to helping people with thyroid problems, hormone imbalances, and weight loss problems get the help that they need. Because of this, people may experience symptoms that may lead them to want to restore whatever thyroid function they can. If you will be traveling via airplane or crossing an international border in the period following RAI treatment, you must be provided with a written document from your healthcare provider stating they you have been given a medical treatment involving radiation, as security monitoring devices can detect it. Radioactive iodine (RAI) is a treatment that uses radiation to treat thyroid cancer. Your concerns should be taken seriously and evaluated. I feel good, but still struggling with tiredness and some weight gain (some weight gain due to post menopause). Radioactive iodine treatment. To keep my glucose readings at or below 120, the desired reading by my PCP and endocrinologist, I am strict to my vegan/plant based diet, and consume 600 to 800 calories per day. If you have any thoughts, I would appreciate those. A swollen or tender neck and feeling flushed. In earlier forms of Iodine contrast, people with Myasthenia gravis faced an increased chance of exacerbation of the disease. I have my thyroid ablated about 20 so years ago. Family Medicine 59 years experience. I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. Doctors tell cancer patients that the thyroid is the only tissue which takes up iodine, thus making this a safe form of cancer treatment that will not . So for the last 6 mos Ive had to take Levothroxine. (former Osteopathic Physician). I also happen to formulate the best supplements on the market (well, at least in my opinion!) Some people, however, may have further trouble after their treatment and suffer from weight gain . Theres no way for doctors to give you a pill once a day and for that pill to perform the exact same function that your thyroid gland does every minute of every day. The permanency can be seen as a benefit as patients condition will become stable and symptoms can be more easily controlled. Iodine (chemical symbol I) is a chemical element. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Rinse your hair with warm water and shampoo it. Claim Your Free eBook Now. I would recommend touching base with your doctor to see if its related to your procedure or if its caused by something else. Flush the toilet twice after using it and wipe it thoroughly to properly get rid of radioactive fluids. I had RAI 1 month ago. The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. If you are unable to avoid direct or indirect contact with infants and young children, ask your healthcare provider about the possibility of hospitalization. Your best bet to AVOID weight gain after RAI is to go into your procedure with a normal weight and to maintain a healthy lifestyle both before and after. and I'm proud to say that over 80,000+ people have used them over the last 6 years. The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. Many doctors recommend that women avoid becoming pregnant for 6 months to a year after treatment. But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. Dont let this be of major concern to you, though, because in most cases these symptoms can be managed. Anecdotally, youve probably already heard stories about people gaining weight after their procedure. Last week labs getting better with a methylpro supplement. Although hair dying can be an artifact on the postablation . If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. The short answer to this is no taking iodine supplements will have little to no effect on your hair growth. Um, Im a night shift nurse on a dementia unit in a nursing home, would you want me taking care of your loved one and have the brain fog, the jitteriness, the irritableness, and depression? I feel more like a ping pong ball being bounced back and forth! IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! Strange I know. I have tried everything and it is frustrating. So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. The only other condition that causes heat intolerance that comes to mind is menopause and perimenopause. I read your list of vitamins all NINE of them, and the only thing I could think of is NO! So, I have to laugh at your 80 to 90% back to a normal life. Difficulty breathing. Will you be able to maintain your current weight? And that training tells me I wont be ready to go back to work that afternoon. I forgot to mention, I was on nature Throid and changed to NP thyroid because of the dosage I need. Apply the mixture to your hair and leave it in for 20 minutes. My hair has always been my pretty part of me, the one thing that makes me feel like a pretty girl. You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. Too much of this hormone can lead to [] I had never been to endocrinology prior and had no idea about thyroid function. If you need to add red tint to your hair, then using carrot juice is one of the easiest ways to do it. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. Hyperthyroidism is a condition where your body produces too much thyroid hormone so the treatment is to destroy your thyroid gland and stop that production. If you are unable to get ahold of them then it may be necessary to go to the ER. my husband had the iodine radiation, for Graves disease. If you have questions regarding your health you should seek qualified information from a medical professional or your doctor. Several of my siblings make fun of me and say I am hiding but dont even know what Graves disease is and I was not around them and did not share my health issues until recently with them. Im worried more about loosing my hair than my life. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. No one told me about any of the particular foods to avoid, I told everyone that I am vegan/plant based diet to control my diabetes and because of many food intolerances to animal proteins. RAI is a form of radioactive nuclear medication that permanently destroys thyroid tissue. I live in Florida and I cannot stand enjoy the outdoors anymore because of the heat. Told to me by each and everyone whos never had this cancer! Some people also feel flushed. Keep Your Distance. I am 70 years old and I am beginning to worry. Learn which foods you should avoid if you have thyroid disease of any type. Reds that lean more violet or pink than red are also your best bet. Fortunately, most patients experience reduced symptoms about a month after treatment. Many clinical studies have also confirmed that weight gain after RAI is a real risk. For most people, this means that you can expect to live at 80-90% of your 'normal'. Now that you are considered to be hypothyroid there is a world of potential therapies, supplements, regimens, and protocols that are available to you. Welcome to my website! If you fit into this category then you may not need to use thyroid medication afterward. There is a paucity of literature on the minimum interval between contrast administration and RAI therapy. Take care in washing, treating and grooming your hair. And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. If it was, then you will most likely need to start thyroid medication relatively soon (within the next days to weeks). Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? And was doing well on a vegan/plant based diet. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . Thanks. Radioactive iodine treatment is a type of radiotherapy is used to destroy the cells in the thyroid gland, reducing the amount of hormones it can produce. Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. Hi Dr. Childs, depression, brain fog and other symptoms for years now. Memory loss. Life has been very difficult as I basically go very few places now and live a life with little social contact. and seriously lethargic?! They also found that nearly 1 third of all patients (31.2%) moved into the overweight or obese category from a lower weight category (based on BMI charts by the CDC). You can eat the following foods because they contain very low levels of iodine: fruits and vegetables including potatoes. With all I forgot I had posted prior. Thank you, {{form.email}}, for signing up. Its even more important to test free thyroid hormone levels if you no longer have a thyroid gland. Add black tea to the darker colors above to help the color last longer. Im so confused my gp has no explanation my hair is falling out I dont eat anything only 3oranges a day and pure fruit juice now I have moderate atrophy on my pancreas and I cant get into a specialist for 1-2 years ., can h explain whats really going on, Please see this article for more information on managing hair loss with thyroid problems: https://www.restartmed.com/thyroid-hair-loss/. I had radiation treatment for my thyroid 5 days ago to shut down my thyroid. When we are deficient in this nutrient, the health of our hair is affected, leading to hair weakness or even total hair loss. Thank you! So I have graves disease but was only diagnosed because I was actually gaining weight. who gave me 150 of Synthyroid. Hi , I just had ROI treatment done a little over a week ago . SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. In this procedure, you are intentionally given Iodide, I-131, which emits radiation. Im hoping I still have some thyroid function based on the fact that he kept lowering my dose of levothyroxine and I can just take your supplements and see some weight loss and feel a bit better. Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. I have to take my Levothyroxine at midnight, as in the morning it causes me to have a jitteriness and brain fog, that is bothersome, and to have it in the time frame away from other meds and meals, midnight is the only option. It sounds like you are not being treated adequately. I have been tested and my doctor says that Im right where I need to be. MY QUESTION IS AM I ABLE TO WORK ABROAD WITH THIS. In some radiation emergencies, usually nuclear power plant accidents, radioactive iodine may be released into the environment and enter the body through breathing or eating it. Radioactive Iodine. I have my EMG the end of the month and take things from there. And if the color is hash on the . Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. It does have effect : Radioactive dyes containing iodine of the iodide type can cause permanent thyroid damage and cancer. But what if you only destroy 30 to 40% of your gland function? Neck tenderness and swelling. Yes, absolutely. Methimazole Side Effects You Should Be Aware Of (What to Expect), Hashimotos vs Graves Disease: Differences & Similarities, read more about my own personal health journey, free thyroid downloads, resources, and PDFs here, https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/, https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/, https://www.restartmed.com/levothyroxine-thyroidectomy-patients/, https://www.restartmed.com/weight-loss-after-thyroid-removal/, https://www.restartmed.com/hypothyroidism-diet/, https://www.restartmed.com/product/thyroidectomy-rai-bundle/, 3 New Thyroid Support Supplements: Thyro Fuel, Thyro Biotic & Hashimotos Ab Rx, The 50 mcg Levothyroxine & Synthroid Medication Hack. First off, why am I so tired? I am now 54 years old. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). The good news is that you can fairly easily identify these symptoms and you can order tests to determine how well your thyroid is functioning. Contact: NCI Press Office. Since the science is inexact there are two ways of approaching the treatment. So far I feel strong and as I did before. Radioactive iodine is a procedure that is often used to treat hyperthyroidism. Rarely, people can feel pain in their neck. Your article is quite interesting. I can barely eat . To increase the effectiveness of your upcoming radioactive iodine therapy, you may be prescribed a low iodine diet. In the mean time, thanks to the WWW. It probably wont be an issue if you left but you wouldnt want to find yourself in a situation where you are unable to get your thyroid medication and your symptoms are poorly controlled. Contrast distinguishes, or "contrasts," between organs, tissues, bones, or blood vessels during your imaging exam. I would like to try some of your supplements, but not sure which ones I should be looking at. For this reason, its ideal to try and lose weight prior to the procedure as opposed to after. Thank you Iodine-131 (I-131) is radioactive. Instead of working to actively reduce thyroid function in your body (which is what the treatment for hyperthyroidism is), you may want to start focusing on how to optimize what little thyroid function you have left. What can I be looking at regarding weight gain. One study looked at 157 people and tracked them both before and after their procedure. As it turned out, my fears, or premonitions were right. Will it . The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly! The last person put me on methazolo and I read the awful side affects. We know that that still leaves lots of options if your heart isn't already set on a color. My question is even though my thyroid is dead, should the T3 and T4 level be tested as well?

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